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Florida Lawmakers, Experts Hold First Meeting of Blood Clot Policy Workgroup
February 23, 2024

FERNANDINA BEACH, Fla. – Emily's Promise, a family foundation committed to preventing blood clots and raising awareness of the life-threatening dangers they pose, hailed the long-awaited first meeting of Florida’s Blood Clot Policy Workgroup as an important step toward addressing the issue of preventable blood clot deaths in the state. 


The Blood Clot Policy Workgroup, led by Dr. Ali Ataya of the University of Florida, was established by the Secretary of the Agency for Health Care Administration in conjunction with the Florida Surgeon General, as directed by the Emily Adkins Prevention Act. 


At this inaugural meeting, the gathering of health care providers, patients who have experienced blood clots, family members of patients who have died from blood clots, and other interested parties conducted an overview of venous thromboembolism (VTE) and current areas of need, including better access to care or medication for individuals suffering from VTE, as well as structured reporting of deep vein thrombosis and pulmonary embolisms.


“It was such a privilege to witness the first meeting of a group whose work literally will save lives,” said Douglas Adkins, CEO of Emily’s Promise, Inc. “Blood clots are killing more people than breast cancer, car crashes, and AIDS combined. I am excited to see the consensus building around the need for a statewide data surveillance system and taking bold steps to address the standard of care.”


Douglas and Janet Adkins founded Emily’s Promise after losing their 23-year-old daughter Emily, an aspiring health care professional, to a fatal blood clot stemming from a fractured ankle. Emily’s Promise aims to honor their daughter’s legacy of kindness and compassion, and to increase awareness of blood clots and pulmonary embolisms. 


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ABOUT EMILY’S PROMISE

Emily’s Promise, Inc. is a not-for-profit private foundation dedicated to the memory of Emily Elizabeth Adkins and raising awareness of blood clots, pulmonary embolisms, and ankle fractures, along with promoting kindness as a community value.

February 20, 2025
TALLAHASSEE, Fla. – Florida’s statutory Blood Clot and Pulmonary Embolism Policy Workgroup has released its final report, supporting a detection system and policies to improve care standards, detection, treatment, and education on the serious risk posed by blood clots and pulmonary embolisms. The workgroup was established by The Emily Adkins Prevention Act, which was signed into law by Governor Ron DeSantis in July 2023. The law was passed in honor of its namesake, a 23-year-old Fernandina Beach woman who tragically died on October 21, 2022, due to a preventable blood clot caused by a fractured ankle. The report set out multiple findings and recommendations for the state, including: ● Blood clots are a major public health threat: Up to 45,800 Floridians experience blood clots each year, with pulmonary embolism remaining a leading cause of preventable hospital deaths. ● Statewide monitoring and standardized care are critical: Florida should create a statewide surveillance system to track cases and improve early detection, and hospitals and health care facilities should be required to conduct risk assessments to ensure that patients receive timely and appropriate blood clot treatment. ● Expanding public awareness and access to care: Education campaigns should be conducted for both the public and health care providers, medical facilities should improve post-discharge follow-ups for high-risk patients, and state support should be provided for specialized treatment centers to enhance care and reduce preventable deaths. “Our goal is to prevent other families from experiencing the heartache we’ve endured,” said Doug Adkins, Emily’s father and CEO of Emily’s Promise. “The recommendations provided by the workgroup will make meaningful progress toward making sure that people don’t die from easily preventable complications with blood clots.” Dr. Ali Ataya, an associate professor of medicine at the University of Florida, leads the workgroup. Other members include representatives from the National Blood Clot Alliance and the Florida Senate. The report also included expert consultations from doctors at the University of Florida, University of Chicago, Indiana University, and Cleveland Clinic. Blood clots are a serious health epidemic in Florida and across the country. The report documents that blood clots account for 10% of all maternal morality and are the leading cause of preventable deaths in hospitals. The report also explores the economic impacts of blood blots, including an annual cost of $7-10 billion to manage new diagnoses. To learn more about the recommendations of the Blood Clot and Pulmonary Embolism Policy Workgroup, view the full report here.  ### ABOUT EMILY’S PROMISE Emily’s Promise, Inc. is a not-for-profit private foundation dedicated to the memory of Emily Elizabeth Adkins and raising awareness of blood clots, pulmonary embolisms, and ankle fractures, along with promoting kindness as a community value.
By Andrew Meacham July 18, 2023
The blood clot that killed Emily Adkins had likely been in her body for some time. How did doctors miss it?
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